This community innovation has been accepted at the 2025 DHIS2 Annual Conference
The National Registry of Childhood Cancer in Chile
The National Registry of Childhood Cancer (RENCI) of Chile, implemented on the DHIS2 platform, has as its main objective to improve the surveillance of cancer cases in children under 15 years of age. Before its implementation, data collection on childhood cancer was done manually, using Excel files and emails, which caused delays in the availability of information and the loss of important data. With the DHIS2 system, data is centralized, allowing rapid and secure access for health authorities and pediatric oncologists, facilitating real-time decision-making and the design of informed public policies. Something very important and significant about the system is the standardization in the coding of cases using international classifications such as ICD-O3, ICD-10 and ICCC-3. Other countries can adopt these classifications to improve the accuracy and comparability of data, which facilitates not only internal analysis, but also comparison at a global level, helping to identify best practices and effective public health policies. Although each country has its own challenges and resources, the implementation of a RENCI-like system can be adapted to local particularities. International organizations or governments can draw inspiration from Chile’s experience to overcome specific barriers in their health systems, such as a lack of trained personnel or limited technological infrastructure. RENCI also improves resource planning and public policy evaluation, contributing to the strengthening of the Chilean health system. In addition, the system facilitates the early identification of potential gaps in the care and treatment of children with cancer.
Primary Author: Monica Serrano Ahumada
Keywords:
Childhood cancer, Epidemiological surveillance, Health data, DHIS2, Cancer registry, International coding, CIE-O3, ICCC-3, Public health, Cancer incidence, Information system, Public policies, Centralized data, Continuous monitoring, Coding standards, Epidemiological analysis, Child health, Health system, Cancer prevention.
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